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The theme for International Albinism Awareness Day 2023 is “Inclusion is Strength”. It is believed to be an extension of last year’s theme, which was “United in Making Our Voice Heard”. It aims to include all types of groups within or outside the albinism community.
Read on to learn in-depth about the importance, history, and timeline of International Albinism Awareness Day.
To understand the importance of Albinism Day, it is important that you first learn what Albinism is. It is a rare genetic disorder in which there is a mutation of genes producing melanin pigment in the body that is responsible for the color of skin, hair, and eyes.
One in every 20,000 people living in Europe and North America is suffering from Albinism and later succumbing to skin cancer. Several people are living miserable lives due to vision impairment and face severe discrimination due to skin tone caused due to lack of melanin in Albinism disorder. Therefore, there was an ardent need to welcome such people into society with open hearts, and for this, the UN introduced International Albinism Awareness Day.
The United Nations declared June 13th, as International Albinism Awareness Day during a general assembly held on December 18th, 2014. The sole purpose to mark this day was to help the albinism communities worldwide to end the unfair attitude towards those suffering from this disorder.
Later NOAH or National Organization for Albinism and Hypopigmentation joined in to help the Albinism community by encouraging people to accept them in society. Every year, International Awareness Day is observed with a unique theme that aims to celebrate the adoption of the resolution to treat Albinistic people with fair treatment in society.
A little extra knowledge is always helpful, especially, when it comes to disorders like Albinism. So, here are 5 facts about Albinism you must know:
Albinism is also known as Hypo-Pigmentation.
Unlike, other genetic disorders, Albinism is quite rare, and only one in 20,000 people suffer from it.
It is quite easy to diagnose Albinism by seeing the color of the skin, hair, and eyes of a person
Although a rare disorder, Albinism is severe and fatal in many cases, and may even lead to skin cancer.
Since Albinism is a genetic disorder, do not be scared to be with an Albinistic person, because it is a non-communicable disease.
Have a look at the timelines of Albinism Day to understand more about its history:
|
Year |
Occasion |
Reason |
|
1908 |
Discovery |
Discovery of Albinism by British physician Sir Archibald Edward Garrod |
|
1949 |
Salif Keita |
Very famous singer with Albinism |
|
Year 1969 |
Connie Chiu |
First fashion model with Albinism became popular |
|
Year 2014 |
International Albinism Awareness Day |
The 1st Albinism Awareness Day was observed by the United Nations |
Since the aim of observing International Albinism Day is to end all the discrimination against those suffering from Albinism, it is celebrated in different ways to spread awareness about this disease. The best ways to celebrate this day are:
The best way to mark Albinism Day is by buying a health insurance plan that offers financial coverage against this disorder for a loved one who has Albinism.
Many people across the globe celebrate Albinism by attending awareness programs to learn more about this disease, its causes, symptoms, and treatments.
Whatever they learn by attending these awareness programs is then passed on to others to spread awareness about Albinism. This fulfills the main aim of this day.
Nothing can be better than donating money to charitable organizations that work for the welfare of Albinistic people in society.
Conclusion
Albinism is one common cause of skin cancer, and throughout life people suffering from this disorder, also face discrimination from others in society. The observance of International Albinism Awareness Day has helped save thousands of lives by spreading awareness about this disease and by putting an end to discrimination towards those suffering from it. This day encourages society to treat Albinistic people as equals.
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Albinism is a rare genetic disorder caused due to a defect in some genes that produce melanin in the body. Melanin is responsible for the pigmentation of skin and hair. Due to this defect, there is a disturbance in the disturbance of pigment production in the body.
A person suffering from Albinism may show symptoms like:
~ Pale skin, eyes, and hair
~ Vision problems
~ Nystagmus or Rapid eye movements
~ Patches on the skin
~ Strabismus or crossed eyes
~ Photophobia or Light sensitivity
Every year International Albinism Awareness Day is celebrated on June 13th. It is observed to spread awareness and discard any discrimination against people suffering from Albinism.
Yes, there are health insurance plans that also cover treatment expenses for Albinism. Make sure to check whether or not a plan offers financial coverage for Albinism before purchasing a health insurance policy.
Every year International Albinism Awareness Day is celebrated with a specific theme. The theme for 2022 Albinism Day was “United in Making Our Voice Heard”. The theme for Albinism Day 2023 is “Inclusion in Strength”.
Yellow is the color for Albinism awareness. People in some countries celebrate Albinism Day by wearing yellow bands and tops.
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