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Updated on Jan 23, 2024
World Rare Disease Day 2024 will be observed on February 28, the last day of the month of February. The day is observed to increase awareness about rare diseases and to support people suffering from such diseases with improved access to treatment. So, let’s get into the details of the day.
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A disease is termed as rare when it affects a single person in over 2,000 people. There are over 6,000 rare diseases identified around the world and over 300 million individuals are living with one or more of such rare diseases.
Rare Disease Day is a global movement on rare diseases that aims at providing equality to people suffering from such diseases. The day is also marked as an occasion to fight for the rights of the affected people in all spheres including healthcare, social prospects and better facilities of diagnosis and treatment.
Overall, it is estimated that an average number of 1 person in 20 suffer from a rare disease or face a rare disease at least one time during their life. Also, only a few of these diseases allow a cure, while for the rest of the people, they might have to live with the disease for life. Rare Disease Day aims to improve awareness of the common people about rare diseases. It also works towards addressing the requirements of such people who are living with a rare disease. Thus, every year the last day of February is marked as a Rare Disease Day.
The Rare Disease Day was founded by a European Association working for rare diseases called EURORDIS along with more than 65 partners of national alliance patient organisations. The special day was initiated first on 29th February, 2008 to mark it on a ‘rare’ date (leap year) which comes only after four years. The day has been celebrated since 2008 on the last day of February every year.
Rare Disease Day is organized to enhance awareness about the rare diseases as well as to allow better access to good treatment for people living with rare diseases. There are many such rare diseases which lack treatment as well as support from organizations and groups.
From the very beginning of the event, the day has seen participation of people from all walks of life through various means such as workshops, art exhibits, and other activities like making rare disease day logos or writing rare disease day quotes etc. The events were held to inspire policy makers to bring change in the overall development and support of people with rare diseases.
Below are some activities through which you can participate in Rare Disease Day activities.
A disease is termed as rare when it affects a single person in over 2,000 people. There are over 6,000 rare diseases identified around the world and over 300 million individuals are living with one or more such rare diseases.
The Rare Disease Day is marked as an occasion to fight for the rights of people living with rare diseases in all spheres including healthcare, social opportunity and better facilities of diagnosis and treatment.
The colour for rare disease day or the colours which signify Rare Disease Day are pink, blue, and green. Further, there may be locally worn symbols that may vary.
A disease is a condition/illness that affects the functioning of human beings. It might also affect animals, plants etc.
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