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Haemophilia is one of the rare conditions in which blood cannot clot properly due to the fact that it lacks satisfactory proteins of blood-clotting. World Haemophilia Day is an event observed worldwide to improve diagnosis and allow access to better treatment to this specific condition. The World Haemophilia Day aims at bringing together people suffering from bleeding disorders from all over the world.
Haemophilia was first acknowledged in the 10th century when doctors discovered people, particularly men, who suffered profuse bleeding just after some minor cuts and injuries. Major breakthrough couldn’t be done at that time about this illness due to limitations of technology.
It was seen that many prominent figures in history at that time had haemophilia, including royal families in Europe.
Philadelphian doctor John Conrad Otto in 1803 started investigating people whom he described as bleeders and discovered it as a genetic disorder. He stated that the disorder was genetically transferred from healthy mothers to their male children at birth. In 1937, Haemophilia was classified into two categories: A and B.
There is no specific treatment of haemophilia found so far. However, the condition can be managed by using regular injection for clotting factors to restrict impulsive bleeding episodes.
17th April was established as World Haemophilia Day by the World Federation of Haemophilia in 1989. The aim of the day is to promote awareness of the condition and to create funds for those who cannot afford treatment.
World Haemophilia Day is important because:
To Sum Up
Haemophilia is an inherited condition, which is passed from parents to children through genes. The condition causes prolonged bleeding after an injury or surgical procedure along with causing painful swelling of the joints. Haemophilia is the most common X-linked disorder. Pregnant mothers act as carriers of haemophilia, though the illness generally hits males only.
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If you are bleeding due to minor cuts, it is not a very big thing. However, if you have severe haemophilia, internal bleeding can be serious. Moreover, if the bleeding is in the ankles, knees or in the elbows, it can be serious as it may harm your organs and tissues, which can be fatal.
Haemophilia is a rare bleeding disease with no permanent treatment at present.
Most blood collection centres refuse to accept blood from donors who are patients of haemophilia because of the dangers of bleeding. It is rather good for such people not to donate blood so that they could safeguard their veins.
A carrier of haemophilia is a woman carrying the haemophilia gene through an abnormal X chromosome
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